Racing Against Time
Thirteen-year-old Audrey Tyrrell from the UK is on a mission to capture a lifetime of memories before a rare genetic disorder steals her vision. Diagnosed at 10 with Usher syndrome, which causes progressive hearing and vision loss, Audrey refuses to let the condition define her.
A Life-Changing Diagnosis
Audrey first noticed trouble seeing in the dark. Her parents sought medical advice and received devastating news. She has Usher syndrome type two, inherited from both parents. Her hearing loss, discovered at just two weeks old, required early hearing aids, but Audrey compares them to glasses, saying she often forgets she’s wearing them.
Her father is also visually impaired and carries a defective USH2A gene, though he doesn’t have Usher syndrome. Doctors cannot predict when Audrey will lose her sight completely, leaving her family determined to embrace every moment while they still can.
Crafting a Visual Bucket List
Audrey created a colorful, handwritten visual bucket list, filled with places and experiences she wants to enjoy. She estimates it will take 10 to 20 years to complete. So far, she has stood before the Eiffel Tower, watched Taylor Swift live, visited Cornwall for a Cornish pasty, and marveled at Stonehenge.
Some dreams, like exploring a rainforest, posed challenges due to fears of snakes and spiders. Instead, she visited the Eden Project to experience a safe, rainforest-like environment. She even spent time at a cat café, making her bucket list as fun as it is meaningful.
Television and Social Media Bring Dreams to Life
Audrey’s story reached “This Morning,” where producers helped make her dreams tangible. She stayed in a historic castle and flew to New York City to see the Statue of Liberty, courtesy of Virgin Atlantic. A surprise ticket to the West End production of Stranger Things: The First Shadow left her emotional, with actress Nell Fisher delivering the news in person.
Her family documents each step on Instagram, @audreys_visual_memories, sharing updates and explaining Usher syndrome. Posts describe her gradual vision loss, balance challenges, and daily struggles.
A Mother’s Love and Advocacy
Tracey Tyrrell, Audrey’s mother, shares both grief and pride. Her posts reflect the heartbreak of seeing her daughter face this condition, alongside joy in witnessing Audrey live fully. Tracey writes, “My loud thoughts are ones of pride, joy, happiness, and hope.”
Fundraising and Community Support
The Tyrrells launched a GoFundMe to fund Audrey’s experiences. Since its start, the fundraiser has exceeded its goal, allowing her to continue ticking off items on her visual bucket list.
Living With Purpose
Audrey’s story is a testament to resilience. Her visual bucket list is more than a collection of dreams—it is a declaration of living with intention, embracing joy, and refusing to be defined by a diagnosis. Her journey inspires others to seize life, one memory at a time.
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